Onedia in the Ozarks

Archive for the ‘Defined and Described’ Category

February 17th, 2011 by Onedia Hayes Sylvest

Some Thoughts For Those Who “Know”

More than I would like, I encounter people who respond to hearing about ADHD, mine or ADHD in general, with “Oh, I do that.”  implying that ADHD in adults is not really a problem because we do not behave like the archetype little boy bouncing off the walls. They also say, “This is nothing important. . .it is not like you have ” some dreadful disease”!. . . .You people are really smart… It is just A behavior disorder….you can deal with it. . .” All of these responses show that this person either does NOT know anything or is denying the realities of  ADHD.   They tell me in one way or another that it is no more than a character flaw or that I need to just get a grip or  to work harder.  It is a non- issue that can be easily altered with a little effort.  It is, after all, nothing fatal and nothing that is really debilitating.

Who, Dear Reader, has any idea of the difficulties of dyslexia for people? I can’t imagine it.

Anyone have any idea of the difficulties for people with visual or auditory processing disorders?  Not me!

Well, ADHD offers distinct challenges  just as either of these learning disabilities.  So those of you who know please,  stop, read, and listen.

I agree, having ADHD is not all bad.  It is a condition that offers many gifts but along with the gits are some huge challenges that we must deal with and if you do not know you have ADHD (for 59 years) some of these challenges can be confusing, perplexing, disturbing, embarrassing, heartbreaking, overwhelming, and sometimes debilitating.  Even with the gifts and especially if we achieve any measure of skill or success you can bet that we work harder, worry more, develop coping skills, never feel like we have achieved as much as we could, and just do not understand why we do some of the things we do and cannot do other things that we so want to do.

What is ADD/ADHD?

Dr. Ned Hallowell explains it for us:

ADD (Attention Deficit Disorder) or ADHD (Attention Deficit Hyperactivity Disorder) is a neurological condition that is usually genetically transmitted. It is characterized by distractibility, impulsivity and restlessness or hyperactivity. In both disorders these symptoms are present from childhood on, and with a much greater intensity than in the everyday person, so that they interfere with everyday functioning.

. . . having ADD is like having a powerful race car for a brain, but with bicycle brakes. Treating ADD is like strengthening your brakes–so you start to win races in your life.

ADD/ADHD in Adults

If you have exhibited at least twelve of the following behaviors since childhood and if these symptoms are not associated with any other medical or psychiatric condition, consider an evaluation by a team of AD/HD professionals:

  1. A sense of underachievement, of not meeting one’s goals (regardless of how much one has actually accomplished).
  2. Difficulty getting organized.
  3. Chronic procrastination or trouble getting started.
  4. Many projects going simultaneously; trouble with follow through.
  5. A tendency to say what comes to mind without necessarily considering the timing or appropriateness of the remark.
  6. A frequent search for high stimulation.
  7. An intolerance of boredom.
  8. Easy distractibility; trouble focusing attention, tendency to tune out or drift away in the middle of a page or conversation, often coupled with an inability to focus at times.
  9. Often creative, intuitive, highly intelligent
  10. Trouble in going through established channels and following “proper” procedure.
  11. Impatient; low tolerance of frustration.
  12. Impulsive, either verbally or in action, as an impulsive spending of money.
  13. Changing plans, enacting new schemes or career plans and the like; hot-tempered.
  14. A tendency to worry needlessly, endlessly; a tendency to scan the horizon looking for something to worry about, alternating with attention to or disregard for actual dangers.
  15. A sense of insecurity.
  16. Mood swings, mood lability, especially when disengaged from a person or a project.
  17. Physical or cognitive restlessness.
  18. A tendency toward addictive behavior.
  19. Chronic problems with self-esteem.
  20. Inaccurate self-observation.
  21. Family history of AD/HD or manic depressive illness or depression or substance abuse or other disorders of impulse control or mood

Please, if you do not have a close friend or loved-one or co-worker with ADHD you probably are like I was before my diagnosis.  I thought I knew, but truly till I put the behaviors and challenges in context of my own life and that of my husband.  I did NOT know.  I read.  I listened. I thought about it.  I talked to people who DO KNOW.  I learned.  I am ashamed that I assumed so much when my nephew was diagnosed.  Id understood about 10 per cent.

Please, do not say  and please do not DO one of the following:

  • “Oh but you should look at it as a gift, because you are creative or smart or yada yada.
  • I do understand you may be trying to reassure me. Do you understand that you are minimizing the daily struggles that we each have just to do what is easy for you and often do so while hiding how difficult it really is for us?  Appreciate the gifts, but take time to find out what we are really struggling with.
  • You are just using this as an excuse for doing what you want and/or for being so rude or annoying”
  • No most of us are actually agonizing over what we say or said or did that we wish we had not.  Just try to be more patient, use a little humor and even just be a kind coach to help us through moments you know we may flub.
  • Roll your eyes when one of us is late  or think we are stupid because we forget to do something.
  • Ask us if there we would appreciate a reminder call or text or email.

We don’t need pity. We don’t need judgment.  We don’t need doubt.  We need respect, understanding, and a little slack once in a while.  When we tell you something is hard, unless you have been diagnosed or can respond positively to 12 or more of the items above don’t tell us that you do this or that all the time. That just belittles us and undermines your credibility!

November 12th, 2010 by Onedia Hayes Sylvest

You Might Be ADHD IF

Lots of people have no idea what life is for an adult with ADD /  ADHD.  It is an invisible disability to the world because people who have it are labeled as lazy, irresponsible, spacey, clumsy, messy, poor communicators, dumb, tactless, and many other derogatory remarks.  People with ADHD  frequently feel that way about themselves even when we know that we have ADHD.  Below are a few experiences that a person with ADHD might have relatively frequently.  It is not a complete or exclusive list simply one that comes to mind from my own experience.

  • You arrive at your appointments  fifteen minutes early and one week late
  • You put things in a safe place never to be seen again
  • Your office, house, or car is messy twenty-four hours after you organize it
  • You miss your exit and do not realize it for 100 miles
  • You hand in your Probability and Statistics final exam scratch paper and throw out your exam solutions
  • You go home regretting something you blurted out in a meeting
  • You arrive at work with mismatched earrings and shoes or your name tag upside down
  • You fidget your hands and feet and shift in your seat  constantly when at meetings or events
  • You cannot remember what you stopped at the grocery store to buy
  • You get stopped for speeding frequently
  • You have had several fender benders
  • You majored in Art, English, History and finally Science ( or fill in the majors) before graduating college
  • You have been married more than two times
  • You miss your international flight because you confused the flight number with the flight time
  • Your five year old daughter regularly stops you from going into the men’s bathroom by mistake
  • You put hair spray under your arms and deodorant on your hair style
  • You leave your keys in the front door overnight
  • You have overdrafts because of arithmetic errors
  • You have unpaid bills because you put the checks and bills into the wrong pre-printed envelopes
  • You think about your shopping list or to-do list during sex
  • You eat when you are bored
  • You “loose your thought” easily
  • You talk and talk and talk till you see people’s eyes roll
  • You are clumsy, have accidents and are  always bumping into things or people
  • You change jobs or careers frequently
  • You are easily distracted from one thing to another
  • You leave a burner turned on high on the cooking range until your spouse or child finds it after dinner
  • You constantly lose your glasses, keys, phone, remote, etc.
  • You lock yourself out of your car, house, office
  • You get half way to the place where your sister’s wedding will be and realize you left your hanging clothes bag in the front hall of your house
  • You leave the eggs out of the cake or add pepper instead of cinnamon
  • You put the lettuce in the freezer instead of the fridge

I could go on but I think you get the idea.  It is invisible but if you compare an MRI of a “normal” brain to an “ADD/ADHD” brain you will be able to see an obvious difference.  More on that in another post.

November 7th, 2010 by Onedia Hayes Sylvest

You Mean I Am NOT A Weak Willed and Lazy Slob

I was 59 in August of this year.  For many months I have seen a therapist (henceforth called the Witchdoctor) to help me deal with chronic anxiety and to help me find ways to establish and sustain better nutrition and exercise habits.  I know what I should do but for several years I have been unsuccessful in completing many of the things that  were needed.  It was a matter of physical and mental well-being. I made some progress, gained new insights into my anxiety and even lost 40 pounds, normalized my cholesterol and blood pressure and improved my energy levels and physical stamina.  All good but I still had chronic inertia. That is, I routinely find myself unable to get started with even basic tasks or undertakings. It sometimes overwhelms me and I cannot make myself begin even the simplest task. I know what I need to do or even want to do.  But, I sit watching TV or doing stuff on the computer while chastising myself for being weak-willed, lazy, messy, and generally derelict. Procrastination, a life-long battle helped by the structure and demands of jobs and child-rearing now unhampered in my setting-my-own-schedule type of life.

Last month I started reading about Attention Deficit Hyperactivity Disorder (ADHD) because of family members  (men and boys) who have ADHD.  I thought I knew about it and felt confident I was only rounding out the knowledge.  My reading led me to symptoms and signs of the disorder including those for adults.  Adults?  If you have it you get diagnosed as a child and it is mostly boys, right?  As I read about ADHD I saw myself and so many of the difficulties I had long attributed to anxiety or to my character flaws or to my personality type, INTJ.  Stunned, I found some self-assessments and proceeded to check off item after item.  I then asked my husband, Matthew, to respond to the assessment about me.  Once again he ticked off item after item.

The next day with hands shaking and voice quivering, I called my therapist blurting out my discovery and sharing some info that I had not thought to tell her before.  ”Ohhhhhhh.” I heard on the on the other end of the line. She suggested a book by Sari Solden to begin reading in the interim until our next appointment at the end of the week. That book increased the shock and dismay I felt.  Yes, after a detailed and thorough diagnostic process I am diagnosed with Adult ADHD.

At this point I am still processing my new reality and awaiting an appointment for a consult on medication.  I am beginning to understand so much, but there is so much to parse, synthesize and assimilate and as always my best tool for doing that is writing.  Writing is and will always be my preferred way of communicating.  So far, I also discovered that I am not alone in not understanding the full realm of ADHD in adults and particularly in women.   ADHD presents differently in girls and women and they face some challenges that boys and men do not.  Women and girls go undiagnosed more frequently than their male counterparts.

AD/HD is a neurological disorder affecting millions of individuals, limiting their potential, affecting their families, and interfering with many aspects of their daily lives. For girls and women, AD/HD is often a hidden disorder, ignored or misdiagnosed by the educational and medical communities causing these girls and women to suffer in silence. . .

Current diagnostic criteria that continue to emphasize traits common to boys leave the majority of girls and women with AD/HD to remain undiagnosed and misunderstood. Improved knowledge and a better understanding of girls and women with AD/HD have the potential to improve many lives and relieve countless women of the shame with which they have grown up. To date, the medical community, as well as the general population, remains ignorant of the unique impact of AD/HD on females, but that is changing. 1

So, for now I will be using my blog to explore my journey with ADHD and I hope, give new insight to others about ADHD.

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